Author: Alan E.H. Emery
Publisher: Oxford University Press, USA
Keywords: facts, dystrophy, muscular
Number of Pages: 192
Published: 2008-06-02
List price: $24.95
ISBN-10: 0199542163
ISBN-13: 9780199542161
The muscular dystrophies are a group of genetic diseases that severely affect children and adults. For sufferers and their family, the illness presents enormous physical and psychological challenges. Written specifically for people with muscular dystrophy and their families, this book answers many of the questions asked about how and why muscular dystrophy occurs, and how it will affect the life of a recently diagnosed child. As well as presenting the reader with advice and an explanation of muscular dystrophy, the book also guides the reader towards further information on societies and supp
Author: Irwin M. Siegel
Publisher: Demos Health
Keywords: families, guide, children, dystrophy, muscular
Number of Pages: 112
Published: 1999-06-10
List price: $19.95
ISBN-10: 1888799331
ISBN-13: 9781888799330
Written for children with muscular dystrophy (MD) and their families, friends and teachers, this book is a guide through the often-frightening labyrinth of medical care that follows the diagnosis of MD. Forthright, clear, supportive and empowering, the book helps readers understand the significance of the signs and symptoms of the disease, treatment options, the disease’s probable course and what may affect it, and choices in directing therapy. This incomparable guide covers: *The diagnosis of childhood muscular dystrophy *Early childhood *Prepuberty *Fractures *Adolescence
Author: Paula Johanson
Publisher: Rosen Publishing Group
Keywords: diseases, disorders, developmental, genetic, dystrophy, muscular
Number of Pages: 64
Published: 2008-09
List price: $29.25
ISBN-10: 1404218505
ISBN-13: 9781404218505
Author: Penny Wolfson
Publisher: St. Martin’s Griffin
Keywords: muscular, dystrophy, identity, genetic, one, family, moonrise
Number of Pages: 256
Published: 2004-05-01
List price: $13.95
ISBN-10: 0312289073
ISBN-13: 9780312289072
In this riveting and thought-provoking memoir about her family, her son Ansel, and his progressive disability, Penny Wolfson embarks on a quest that explores special education, giftedness, prenatal testing, and the genes she shares with her mother, sisters, and son. While Moonrise is an eloquent narrative of one family, it also asks profound questions about our genetic selves.
Author: Peter Harper
Publisher: Oxford University Press, USA
Keywords: medical, publications, oxford, facts, dystrophy, myotonic
Number of Pages: 128
Published: 2002-08-08
List price: $49.95
ISBN-10: 0198525869
ISBN-13: 9780198525868
Consumer-oriented text provides information for families and patients on myotonic dystrophy. Covers a wide range of aspects of the disease explaining in simple terms exactly what the condition is, what the symptoms are and how they can or might develop. Presents tools to find out additional information and taking an active role in treatment. Softcover.
Author: Elizabeth Elster
Publisher: iUniverse
Keywords: neurovascular, dystrophy, reflex, living, pain, power
Number of Pages: 110
Published: 2007-06-14
List price: $12.95
ISBN-10: 0595437168
ISBN-13: 9780595437160
Power Through Pain is a moving, inspiring memoir of Elizabeth Elster and her family’s three and a half year struggle to find a solution to Elizabeth’s intense daily pain. Eventually, after seeing twenty physicians, ingesting countless medications, and enduring many invasive medical procedures, the Elster family’s search ends in success. Too often, individuals in chronic pain become isolated and embittered. This is a wonderful account of an individual’s courage, determination and hope that will help other families struggling with rare chronic illnesses weave a path throu
Author: Hooshang Hooshmand
Publisher: CRC Press
Keywords: prevention, management, dystrophy, sympathetic, pain, reflex, chronic
Number of Pages: 224
Published: 1993-03-26
List price: $259.95
ISBN-10: 0849386675
ISBN-13: 9780849386671
The most misunderstood and complex subject in medicine is the hyperpathic pain of sympathetic dystrophy. More common than previously thought, it comprises between 10 and 20 percent of chronic pain patients. Understanding this self-perpetuating pain -- which "never stops" -- requires unbiased knowledge of physiology and pathology. Chronic Pain: Reflex Sympathetic Dystrophy, Prevention, and Management is devoted to the subject of Reflex Sympathetic Dystrophy (RSD). The book classifies the different stages of RSD and describes the qualitative and quantitative differences between natural endorphin
